Anyone diagnosed with FOXG1 Syndrome should qualify for disability benefits under the SSA’s Compassionate Allowance Program. This is because when diagnosed with this medical condition the victim is unlikely to fully recover and will need care for the remainder of life. The Compassionate Allowance Program allows for the fast tracking of disability benefit claims for victims of medical conditions who can prove they have a severe medical condition when recovery will not occur in the next 12 months and the victim is unable to work.
What is FOXG1 Syndrome?
FOXG1 Syndrome is a rare neuro-developmental disorder caused by a mutation of the FOXG1 gene, which has an impact on brain development and function. It occurs in early infancy and anyone diagnosed with it is unlikely to improve. In fact most children with FOXG1 Syndrome never even learn to walk or speak and require lifelong assistance with even the most basic of tasks such as eating and going to the toilet. Many young children who are affected by FOXG1 Syndrome are unable to sit or walk independently, talk or feed themselves, and need the use of a wheelchair. Some may also have scoliosis, visual impairment, gastrointestinal difficulties such as reflux and constipation, and sleep problems.
What is a Compassionate Allowance?
Compassionate Allowances are a way the SSA identifies diseases and other medical conditions that are likely to meet the requirements for eligibility for disability benefits. The medical conditions that typically qualify for disability benefits are some cancers, adult brain disorders, and some rare disorders that affect children such as FOXG1 Syndrome. This initiative helps to reduce the waiting time for a disability determination for those who have been diagnosed with the most severe disabilities with the poorest of likely outcomes.
To qualify for disability benefits the victim needs to experience tonic-clonic seizures at least once a month for at least 3 consecutive months. There needs to be disorganization of motor function in two extremities resulting in an extreme limitation. Also there needs to be a significant below average general intellectual functioning.
Medical Evidence for FOXG1 Syndrome
The main medical evidence needed to prove an infant is suffering from FOXG1 Syndrome and which meets the SSA’s Blue Book listing is the result of genetic sequencing tests on the patient’s blood. These sequencing tests will confirm the mutation of the FOX1 gene which is the cause of the condition and its associated symptoms.
Get Help With Your SSD Claim
It is often hard to win a claim for disability benefits without the experience of a lawyer.
A lawyer may be able to help you file a claim for disability benefits as long as the right evidence is provided which proves the FOXG1 diagnosis. The lawyer may be able to help complete the application for Compassionate Allowances so that your claim can be awarded as soon as possible.
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