Kidney transplant

Submitted by Anonymous (not verified) on Mon, 11/14/2011 - 11:43

I am 52 years old and have been disabled for 8 years due to renal failure. My question is, since I have had a kidney transplant, does my social security benefits end. If so when, because there is always a chance of rejection. If it does end, I do not want to be taken by surprise, will they let you know early enough, or will it be oneof those deals where they just cut you off, then inform you that you are no longer eligible?

Eugene (not verified)
Sun, 04/02/2017 - 19:14 Permalink

The doctor said that I would need a kidney transplant but I'm only 35 years old and I was denied before I found Out I need a kidney transplant so do you think I'll be approved for my ssdi


In reply to by Eugene (not verified)

Mon, 04/03/2017 - 15:09 Permalink

Hi Eugene,
I am very sorry to hear that. A kidney transplant is an automatic medical approval for SSDI disability benefits.
Best Wishes,

Annie (not verified)
Sat, 04/08/2017 - 10:40 Permalink

I receive social disability from my employer, as well as see,I am not at retirement age but
I can retirement from my employer now, sure to my disability, do I need to contact social
Social security, of my decision, will my disability from social security increase

Eric (not verified)
Mon, 04/10/2017 - 12:59 Permalink

I had both of my kidneys removed: one in 2013 the second in 2014. I was on Dialysis for one and half years. I received a new kidney in Dec. of 2014 and in Dec. of 2016, SSA told me that they would be stopping my benefits. The 12 months ended in Dec 2016, at that time, I asked a Hearing to keep my benefits going due to complications regarding immune suppressants, and I have been trying to find work, which has been very difficult. I can no longer work at my past job due to the line of work I was in can be very dangerous for someone with a suppressed immune system. The Hearing is coming soon and I honestly need more time. I was hoping they could help me by continuing my Social Security Benefits to live on and the medical benefits because the medicine is outrageously expensive and I need it to keep the kidney.

Heather (not verified)
Mon, 04/17/2017 - 11:24 Permalink

What is the difference between SSI and SSA?


In reply to by Heather (not verified)

Mon, 04/17/2017 - 13:50 Permalink

Hi Heather,
Supplemental Security Income (SSI) program pays benefits to disabled adults and children who have limited income and resources. SSI benefits also are payable to people 65 and older without disabilities who meet the financial limits.

The SSA stands for Social Security Administration and it is the governing body that administers Social Security to those who qualify.

Best Wishes,

Angela (not verified)
Wed, 04/19/2017 - 19:52 Permalink

I received a kidney 1 year ago and I'm about to return to work in a week (was off 3 1/2 yrs) I pray my health remains well. I have neuropathy in both feet and on set diabetes but hear that is not a disability. I hate the agent didn't stop my back to work ticket yrs ago when I returned to work after going from hemo back to CAPD. This is the time I really need that ticket....I'm going back because I'm nervous with the 1 yr and 3 yr I hear conflicting stories about. I don't even want to talk about the what if because I never want to look dialysis although I thank God it was a living option. Wish all well....

James (not verified)
Sun, 04/23/2017 - 03:38 Permalink

Are transplant recipients protected under the ADA, because of the dependency of having to take anti-rejection medication for life?


In reply to by James (not verified)

Thu, 04/27/2017 - 15:22 Permalink

Hi James,

I'm sorry to say I cannot answer your question. I would recommend speaking to someone at the SSA about that: 1-800-772-1213

Best of Luck,

Gregg p (not verified)
Thu, 04/27/2017 - 01:28 Permalink

if you are already on social security for kidney failure and you receive a kidney transplant can you still collect

Thu, 04/27/2017 - 15:40 Permalink

Hi Gregg,

You still may be entitled to collect benefits.

Best of Luck,

Jonathan (not verified)
Wed, 05/03/2017 - 07:57 Permalink

I had my transplant in Dec of 2012 and iam up for review will I lose my ssd benefits

Billy (not verified)
Sun, 05/07/2017 - 23:48 Permalink

I had a kidney transplant in 2014 and my time is up but i have congestive heart failure and i try to work my breathing is pretty bad and i get out of breath while i work and i take a lot of med that put me to sleep do i apply again

anonymous (not verified)
Mon, 05/15/2017 - 17:05 Permalink

hi, I just received a kidney transplant 3 weeks ago, I am 33years old and I was working as a CNA right before I received the transplant. Am I eligible to receive ssd, right now I'm out of work for roughly 3 months according to my surgeons

anonymous (not verified)

In reply to by Eric

Mon, 05/22/2017 - 18:08 Permalink

thank you, I'll look into it. I was curious if I was eligible or not. I'm 33 and work as a CNA in a rehabilitation center, and I'm not rushing to get back to having to lift patients. I also have back pain that doesn't go away and chronic anemia

Charley (not verified)
Wed, 06/07/2017 - 10:31 Permalink

I have kidney failure and waiting for a transplant. And if i get one will there be a chance to loose if u have the HPV virse. That will never go away .


In reply to by Charley (not verified)

Wed, 06/07/2017 - 15:19 Permalink

Hi Charley,
I really could not say as we do not have the medical expertise necessary to say how the HPV virus would affect a kidney transplant.

Ammi (not verified)
Mon, 06/12/2017 - 04:50 Permalink

I am 42 years old and started dialysis last year. I applied for disability and was approved for SSD but not for Medicare, is that usual? I just had a kidney transplant 5 months ago and I am struggling Getting an affordable medical insurance due to an excess of income from SSD.

Sarah (not verified)
Wed, 06/14/2017 - 11:07 Permalink

I've been receive benefits since i was 18 due to dialysis and 2yrs ago, i received a transplant. I am being reviewed now. Since i have CAD and a bad bck, will i still recieve benefits?


In reply to by Sarah (not verified)

Wed, 06/14/2017 - 13:05 Permalink

Hi Sarah,
You may be able to do so, however it may require an application for benefits based on those conditions.

Libby (not verified)
Mon, 06/19/2017 - 09:03 Permalink

My husband had renal failure with CHF complications 3 1/2 years ago. Last year he received a kidney transplant on July 26th, 2016. He's doing fairly well, but is diabetic, has neuropathy in both feet, and the post-transplant meds are making him very forgetful with abrupt mood swings. He is 53 years old and has been on SSD for 3 years. We were told that his SSD would end at 12 months after his successful transplant. He's been looking for work since January without success. No one is willing to take a chance on an older worker with significant health issues.

I have two questions: 1 - how does the SSD office calculate the 12 months post transplant? Will the June payment be his last, or will July count as the 12th month since the transplant was so late in the month? 2 - what are the criteria for being able to continue receiving SSD after a kidney transplant? We're having a hard time getting or finding any concrete information and are a point where we must make a plan for how we will survive going forward. Thanks!


In reply to by Libby (not verified)

Wed, 06/21/2017 - 14:14 Permalink

Hi Libby,
While benefits are terminated after someone is sucessfully recovered and can return to work after 12 months, your husband's condition may make him eligible for benefits past the 12 months. You may want to contact your local SSA office regarding this as they can give you information specific to your husband's case. You can find a listing of them here:…

john z. (not verified)
Sun, 06/25/2017 - 10:38 Permalink

I've been on dialysis for 2 years and been receiving ssdi for the same amount of time. At the time of diagnosis of end stage renal failure, i was also diagnosed with diabetes, cardiomyopathy, hypertension, obesity, & chronic gout, these were in my application for ssdi. If i get a transplant, would i lose my ssdi after 12 months, considering the other factors in my health?


In reply to by john z. (not verified)

Tue, 06/27/2017 - 14:59 Permalink

Hi John,

I am sorry to hear that. I can't say for sure, but getting a kidney transplant could automatically qualify you for SSDI on its own. I would recommend speaking to a representative from the SSA regarding your unique situation. 1-800-772-1213.


TONYA JONES (not verified)
Wed, 07/05/2017 - 23:32 Permalink

If you loose(GOD FORBID)Your SSD do you qualify for SSI Supplemental if you Can't Work?


In reply to by TONYA JONES (not verified)

Thu, 07/06/2017 - 09:22 Permalink

HI Tonya,
You may qualify if you meet the criteria for SSI. You do not do so automatically.

Crystal lewandowski (not verified)
Tue, 07/11/2017 - 16:46 Permalink

Hi I received a kidney transplant April 25th of this year why did my 2ndery insurance get stopped being played there is no way I can spend almost 600.00 that they want me to pay for 2months is there any way I can get help with paying for this there's no way I can pay almost 3hundred dollars a month for insurance I'm on ssi and that barely gives me enough to live on PLEASE HELP.... I CAN'T FIND ANSWERS


In reply to by Crystal lewandowski (not verified)

Wed, 07/12/2017 - 09:51 Permalink

Hi Crystal,
I'm sorry to hear about that! You may want to reach out to the office in your state the covers Medicaid, they may be able to help you with this.

Robert Barone (not verified)
Fri, 07/14/2017 - 10:25 Permalink

Hello my name is Robert and I am 52 years old I had a kidney transplant in 2000 and have been working ever since. My body is telling me it's time to stop and I'm wondering if I can retire early and what S.S.benefits/insurance are available to me? And how do I start the process? Thank You !

Michelle (not verified)
Tue, 07/18/2017 - 05:14 Permalink

I have been on dialysis 25 years. I have thought about transplant but being sick this longI have no career. I'm scared. Dialysis is my safe spot to make life work for me. I want to work and be great. Being on dialysis this long is there any thing I could qualify for to help me move forward and get into a work field with benefits? Would VR help any?

Nick (not verified)
Fri, 08/18/2017 - 15:58 Permalink

I have kidney transplant surgery planned for the month of Oct'17. I am not on dialysis and currently working full time. I have medial insurance from employer and I plan to apply for short team disability. I am taking 3 months unpaid FMLA from my work. Can I apply for SSDI ? If yes how long I will get the payment?



In reply to by Nick (not verified)

Mon, 08/21/2017 - 09:07 Permalink

Hi Nick,

You may be able to get SSDI, but there really isn't a black and white answer on when you would get your payment though.

Best of Luck,

Anonymous (not verified)
Tue, 08/29/2017 - 12:11 Permalink

I have been thinking about a kidney transplant but I also have degenerative disc disease, thyroid disease bulges in my lower back and every few months I have to have infusions for my lower leg also I have neuropathy from head to toe. If I get a kidney transplant, would these other conditions allow me to keep ssi cause I am in a mobile chair at times.


In reply to by Anonymous (not verified)

Tue, 08/29/2017 - 13:37 Permalink

Hi there,
You may still qualify for disability benefits if you have those conditions and are determined to be unable to work due after the kidney transplant.

Jason (not verified)
Fri, 09/08/2017 - 22:06 Permalink

if I have a kidney transplant, how much income would I receive form ssdi?


In reply to by Jason (not verified)

Mon, 09/11/2017 - 09:24 Permalink

Hi Jason,

I can't say for sure, but those who apply for disability benefits after a kidney transplant generally get approved.

Eric Boardo (not verified)
Wed, 09/27/2017 - 22:29 Permalink

I am currently on SSDI. If I have a kidney transplant, will my benefit pay change (get lower) if I make less money the second time around when I retire.

Christopher fordham (not verified)
Sat, 09/30/2017 - 17:33 Permalink

I gave my dad my kidney back n 1989'90 could I be able to apply for benefits I'm still working but it's get harder n harder for me to do so I am 50 n I need some information on this matter please help me understand what to do

CA (not verified)
Sat, 09/30/2017 - 23:51 Permalink

I received my kidney and pancreas transplant toward the end of February 2017. I just received in the mail the Medical Review forms. I still have another 5 1/2 months until it's 1 year post-transplant! Is this a mistake? Do I have to fill out these forms or do I need to call or visit Social Security and let them know it's too soon?


In reply to by CA (not verified)

Mon, 10/02/2017 - 09:57 Permalink

Hi There,

I would recommend speaking to a SSA representative regarding your matter. 1-800-772-1213.

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